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After the diagnose

 For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Rubinstein-Taybi syndrome. 

Na de diagnose Rubinstein-Taybi Syndroom, kan het zijn dat je in eerste instantie behoorlijk schrikt. Al waren er wellicht vermoedens dat er iets niet goed was, de definitieve diagnose kan hard aankomen. Vragen die kunnen opkomen zijn: 'Waar kom ik meer te weten over dit syndroom?', 'Hoe ernstig is het?', 'Wat is de levensverwachting?', 'Hoe moet dat met de verzorging?' en 'Wat betekent dit voor het leven van mij en mijn gezin?'.

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Rubinstein-Taybi syndrome
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OVER HET RUBINSTEIN-TAYBI SYNDROOM
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