For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Rubinstein-Taybi syndrome.
De beste en meest betrouwbare informatie is te verkrijgen bij degenen die er het meest mee te maken hebben: de ouders van kinderen en volwassenen met het Rubinstein-Taybi Syndroom, en natuurlijk de kinderen en volwassenen zelf.
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