For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Rubinstein-Taybi syndrome.
Bij 25 procent van de kinderen is sprake van aangeboren hartgebreken. De ernst hiervan kan variëren van een klein gaatje tussen de hartkamers of boezems tot gecompliceerde afwijkingen. Soms is een operatie noodzakelijk.
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Do You urgently need help? Contact the Rubinstein-Taybi syndroom expertise centrum!
Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.
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