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WaihonaPedia helps people with lifelong rare conditions
As families and carers, we learn and discover a lot
This experiential knowledge can be shared. That's why we talk about our openness philosophy. Together with friends and experts, we will solve questions about the rare condition.
Welcome on our place especially for care-intensive people.
WaihonaPedia responds to the needs of rare 'care-intensive people’ and their families, caregivers, teachers, doctors and therapists. These needs are;
- personalized information based on best available information and experiences of others,
- connection,
- asking questions and getting answers
- plan for the best possible quality of life
We do this by supporting international communities for these people. Explore the communities that already joined below to ho you can see and learn, know and share together with one of our communities. Can't find the community you're looking for? Request this to be supported
