Stichting WaihonaPedia

Ons doel is om het welzijn en het geluk van mensen met zeldzame aandoeningen en hun naasten te vergroten. Dit doen we door essentiële kennis van ouders en experts met elkaar te delen via ons online platform en kennisworkshops te organiseren.


We will contribute to a better quality of life for families around a disease by helping communities to offer precisely that information to a family that will allow them to make the right decisions, to feel empowered with solutions and to get energy from support(ing) others with the same disease.

Calendario dei nostri eventi   

Our approach

We offer a platform to which communities around a rare disease can connect. Through our platform communities will help each other by sharing best practises. Also many of the complications in the disease are present in other diseases as well. Through our smart platform you can easily use the information provided by another disease and give it the details of your own disease.We are a non-profilt organization and will always protect the interests of our communities. We do not sell or provide informations to any other organization as the ever growing list of connected communities.
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Informazioni di contatto

Secretariaat Stichting WaihonaPedia:
Choorstraat 53  5211 KZ 's-Hertogenbosch

GZG Terrein, Stergebouw, Burgemeester Loeffplein 70b/c 5211 RX 's-Hertogenbosch

Leggi di più sulla nostra comunità...

I nostri volontari e sostenitori...


Prof. dr. Rob Heethaar


Els van Overbruggen-Hartman


Gerritjan Koekkoek


Willem Stolwijk


Segui questi passi...

Altrimenti contatta il tuo centro nazionale di competenza

La nostra visione

Le nostre comunità


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