Communities participating
The WaihonaPedia platform belongs to the 'participants', the organisations that represent people around a disease. The real 'patients'. The platform is completely independent from professional (healthcare) organisations and the participants determine what information can be found there.
The platform is in no way 'commercial' and information remains at all times the property of the 'author'. We do NOT share information with third parties, an individual family can decide that about their own information.
Partners for WaihonaPedia
- Amsterdam University Medical Centre; Centre of Expertise (AECO) amongst others.; Pitt-Hopkins, Marshall-Smith-, Rubinstein-Taybi- and Cornelia de Lange-syndrome
- WaihonaPedia Foundation
Participants see below
Last modified by Gerritjan Koekkoek on 2022/06/22 14:22
Created by Gerritjan Koekkoek on 2021/07/07 14:15
Our communities
Marshall Smith Syndrome Research Foundation
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KansPlus
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Vereniging Cornelia de Lange syndroom
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Stichting Pitt Hopkins Syndroom
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Nederlands, headerIconURL=, headerTitle=Stichting Pitt Hopkins Syndroom, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/angelman/WebHome/vasnlogo.png?keepAspectRatio=true&height=100&rev=1.1)
Vereniging Angelman Syndroom Nederland
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Nederlands, headerIconURL=, headerTitle=Vereniging Angelman Syndroom Nederland, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/rts/WebHome/rtsLogo.svg?keepAspectRatio=true&height=100&rev=1.2)
Stichting Rubinstein-Taybi
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Stichting Tubereuze Sclerosis Nederland
