Ontmoetingsdag 2018

Vereniging Cornelia de Lange syndroom
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Finished, Closed!


Stories are written for and by people around a rare condition, so we know what we are talking about. We listen to all the stories, write them down and share them. And translate relevant news about a rare condition into readable articles. In this way we want to connect families, let them laugh and relax or give them just that little bit of support.

Because if there is something important for families with a care-intensive person like a rare condition, it is that the family remain upright. And that is what we, as community around a rare condition, are committed to doing with heart and soul.

    Every person is unique!
    The value of a smile!
    The power of Love!

About the website contents


All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

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