Ontmoetingsdag 2018

Vereniging Cornelia de Lange syndroom
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Stories are written for and by people around rzadkie schorzenie, so we know what we are talking about. We listen to all the stories, write them down and share them. And translate relevant news about rzadkie schorzenie into readable articles. In this way we want to connect families, let them laugh and relax or give them just that little bit of support.

Because if there is something important for families with a care-intensive person like rzadkie schorzenie, it is that the family remain upright. And that is what we, as community around rzadkie schorzenie, are committed to doing with heart and soul.

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