Why should you sign up?


We all got involved with Cornelia de Lange syndrome for different reasons; we have CdLS, we are parents, we are brothers or sisters, we are family or friend, we are caring for a person with CdLS, we are doctors, we are teachers, we are researchers, we are curious...
And because we are this we understand the importance of sharing our experience!

You will have something to share as well, maybe just that you are 'involved'... but by seeing (reading), talking (writing), learning and sharing we will make life with CdLS more beautiful, that is our dream.

So please signup for our online community, it is free

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