WaihonaPedia

un endroit pour voir, parler, apprendre et partager !!

WaihonaPedia



WaihonaPedia for Communities

 

1

Engage

Discover a new way of working that optimizes the sharing of information, organizing peer contact, and preserving acquired knowledge. 

2

Refocus

Supporting your community through our platform will save you time, money and efforts. Refocus on what really matters: your members!

3

Cooperate

Benefit from working together with others. Learn from each other and use each others knowledge to strengthen your own community. 


WaihonaPedia for families

 

1

Your Story

Tell us your story. Sharing stories helps families feel supported and creates a sense of community. Your story is important for all of us!

2

Discover

Discover a community of like-minded people and find support along your quest. Otherwise, start a community of your own - we'll help you. Either way, you are not alone!

3

Join

Become an active member of your community. Share, discuss, ask questions and contribute. Everyone knows something, together we know everything!

Notre communauté à l'échelle mondiale

There are many people living with rare conditions that impact your well-being. This raises specific questions, such as: "Is treatment/healing possible, what does this mean for care and support or where can I get (financial) help?". This information is often difficult to find or not appropriate to personal circumstances.

Participation à l'échelle mondiale

Communautés : 13

Pays : 32

Personnes : 469

Conditions: 22

Centres d'expertise: 11

Nos amis

What is WaihonaPedia?

WaihonaPedia is a well-secured online platform that supports patient organizations in managing their community. It is your ultimate solution for individuals with rare diseases and their families. It provides a safe environment for sharing information, organizing peer support, arranging contact with experts, and documenting accumulated knowledge and experience.

Join our international community today and experience the power of connection and knowledge-sharing!

Network

WaihonaPedia offers global online communities where people can connect around issues that impact them while living with a rare condition.

Knowledge

We build up knowledge by gathering, sharing and preserving information and experiences to improve the quality of life of people around a rare condition.

Connection

WaihonaPedia is a safe meeting point where you can meet others like you. Learn from and support each other. 

If you are interested in improving the way your patient organization works,

please contact us by e-mail.

find us on linkedIn (stichting WaihonaPedia)

À propos du contenu du site Web

 

Toutes les informations contenues dans ce site Web sont uniquement destinées à des fins éducatives. Pour obtenir des conseils, des diagnostics et des traitements médicaux spécifiques, adressez-vous à votre médecin. L'utilisation de ce site est strictement à vos propres risques. Si vous trouvez quelque chose qui, selon vous, nécessite une correction ou une clarification, veuillez nous en faire part à l'adresse suivante : 

Envoyez un courriel : wiki@waihonapedia.org