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Our information is written for and by people around Rubinstein-Taybi syndrome, so we know what we are talking about. We search for information, rewrite them to be understandable and share them. And share relevant news about Rubinstein-Taybi syndrome by readable articles. In this way we want to inform families, make the feel empowered to educate the cure- and care-people or give them just that little bit of support.
Because if there is something important for families with a care-intensive person like Rubinstein-Taybi syndrome, it is that the family remain upright. And that is what we, as community around Rubinstein-Taybi syndrome, are committed to doing with heart and soul.
Rubinstein-Taybi syndrome is a condition characterized by short stature, moderate to severe learning difficulties, distinctive facial features, and broad thumbs and first toes. It occurs in an estimated 1 in 125,000-300,000 births.
