Share your stories
Stories are written for and by people around Rubinstein-Taybi syndrome, so we know what we are talking about. We listen to all the stories, write them down and share them. And translate relevant news about Rubinstein-Taybi syndrome into readable articles. In this way we want to connect families, let them laugh and relax or give them just that little bit of support.
Because if there is something important for families with a care-intensive person like Rubinstein-Taybi syndrome, it is that the family remain upright. And that is what we, as community around Rubinstein-Taybi syndrome, are committed to doing with heart and soul.
Rubinstein-Taybi syndrome is a condition characterized by short stature, moderate to severe learning difficulties, distinctive facial features, and broad thumbs and first toes. It occurs in an estimated 1 in 125,000-300,000 births.
