Calendar of Events
Participate when it suits you
We have several participation options that are always open, pick your own time to study or help.
Whether you're looking for the next family gathering, a online workshop, or just want to see what's going on the world of a rare condition, the calendar of events has all the what, when and where you need.
Below you will see events about a rare condition hosted anywhere in the world.
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Zorg en leven in balans
Finished! -
Familiedag 2024
Finished! -
Netwerkvorming en OC: een tweedaagse workshop
Finished! -
Familiedag 2024
Finished! -
Terugblik Informatiedag 2023
Finished! -
Internationale Conferentie over Burgerwetenschap
Finished! -
Extra snoezeltraining
Finished! -
Familiedag RTS
Finished! -
Nationaal Event Zeldzameziektendag $services.localization.render('platform.appwithinminutes.appHomePageTitle', [$doc.space])
Finished! -
SYMPOSIUM
Finished! -
Informatie Dag 2022
Finished! -
Leefstijl Poli Plus
Finished! -
Hoe kun je omgaan met verhalen van patiënten, in boekvorm of op het web?
Finished! -
Samen beslissen samen doen Dementie en verstandelijke beperking
Finished! -
Ons pad naar de toekomst
Finished! -
Inspiratiesessie Ondersteunde Communicatie Angelman Syndrome
Finished! -
Praat mee in de Dementiekamer
Finished! -
Ask a question Marshall-Smith syndrome
Finished! -
Pain
Finished! -
Hoe kunnen we pijn herkennen bij
Finished! -
Pijn en Pijnherkenning What is Pitt-Hopkins syndrome?
Finished! -
TACIT Knowledge project
Finished! -
Communicatie, van levensbelang! Angelman Syndrome
Finished! -
Informatiedag november 2019
Finished! -
Inzicht in het gedrag bij Pitt-Hopkins syndrome
Finished! -
Behavior of people with Malan syndrome
Finished! -
Familiedag 2019
Finished! -
Informatiedag 2018
Finished! -
2018 Ontmoetingsdag Cornelia de Lange syndrome
Finished! -
Leer over jouw Rubinstein-Taybi syndrome
Finished! -
Ask your questions about Pitt-Hopkins syndrome
Finished!