Communicatie, van levensbelang voor het Angelman Syndroom

Vereniging Angelman Syndroom Nederland
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Finished, Closed!


Stories by you, involved by a rare condition, are very important to us. We listen to all the stories. We might learn from you and/or understand the struggles you are going through. Your story might be relevant to others that are also involved with a rare condition. In this way we want to connect families, let them laugh and relax or give them just that little bit of support.

Because if there is something important for families with a care-intensivecare-intensive: a lot of care is needed. A care-intensive child is a child with a physical, mental or behavioural disability (or a combination thereof) that requires extra care.
care-intensive: a word that we came up with, with which we focus on the experience of the care with a rare condition rather than the diagnostics. child like a rare condition, it is that the family remain upright. And that is what we, as community around a rare condition, are committed to help and listen to you with heart and soul.

    Every person is unique!
    The value of a smile!
    The power of Love!

About the website contents


All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

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