Rodzice, opiekunowie, pracownicy służby zdrowia i nauczyciele często mają wątpliwości i pytania dotyczące opieki i dobrego samopoczucia osób z Cornelia de Lange syndrome.
Due to limited communicative abilities, individuals with CdLS may be unable to report pain and it may be difficult to identify the cause.
Pain in CdLS can lead to substantial behavioural difficulties.
Pain and Behaviour
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Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.
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