Communication and language

For forældre, plejere, sundhedsplejersker og lærere opstår der ofte bekymringer og spørgsmål vedrørende pleje og velvære for personer med Cornelia de Lange syndrome. 

Communication abilities vary widely in CdLS. Typically, individuals with CdLS experience major difficulties in communication and many individuals do not develop verbal communication. Speech difficulties in CdLS often occur due to abnormal muscle tone. However, visual impairment, hearing loss and mouth structure or jawbone abnormalities can also lead to speech and communication difficulties. 

Difficulties in communication and understanding communication can also arise from cognitive impairment (problems with memory, thinking and communication).

Currently there is little research on the relationship between intellectual functioning, behaviour and communication skills in CdLS. 

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