Medical Care transitioning

For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange syndrome. 

The medical section of transition goes over medical transition, puberty and sexuality. It gives parents and caregivers a better understanding of what to expect during the adolescent years and how to better manage the different stages of a growing child.

Healthcare Transition Planning is the purposeful, planned movement of young adults from a child-centered to an
adult-oriented healthcare system (Antosh et. al., 20 l3).

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