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 For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Rubinstein-Taybi syndrome. 

Heel zelden komen afwijkingen aan chromosooom 16 of 22 bij ouders of andere familieleden van kinderen met RTS voor. De kans dat in één gezin een tweede kind met RTS wordt geboren is erg klein.

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