Marshall-Smith Families as experts
welcome
at the Marshall-Smith Families as experts
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Our goal
To collect best-practises and best answers. We are not doctors, but doctors can use our knowledge to devlop knowledge about MSS! Important!Marshall Smith Syndrome Support Group is a Secure Facebookgroup for any Family Member or Caregiver of a person with MSS.
Team
Linda Van de Wetering-Mak
Henk-Willem Laan
Otto Mak
What we do
Clinical centre | |
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1 | Evidence for a strong knowledge base of decease |
Research Centre | |
2 | Evidence for a strong knowledge base of the decease |
Practical
When questions are raised participants of the group can react. We will ask permission to share the answer on the internet (Anonymised)Everybody knows something, together we know everything !Costs
Participation in our group is completely free, but only for people with a clear relation to Marshall-Smith SyndromeContact
Marshall-Smith Families as experts
MSS RESEARCH FOUNDATION
Oeverbiesstraat 20
NL-2548WP The Hague
The Netherlands
NETHERLANDS
by phone: +31 70 33 56956