Marshall-Smith Families as experts


welcome

at the Marshall-Smith Families as experts

Goal of Marshall-Smith Families as experts

Our goal

To collect best-practises and best answers. We are not doctors, but doctors can use our knowledge to devlop knowledge about MSS! Important!

Marshall Smith Syndrome Support Group is a Secure Facebookgroup for any Family Member or Caregiver of a person with MSS.

  

Team

NETHERLANDS
NETHERLANDS
NETHERLANDS

Linda Van de Wetering-Mak

NETHERLANDS
NETHERLANDS
NETHERLANDS

Henk-Willem Laan

NETHERLANDS
NETHERLANDS
NETHERLANDS

Otto Mak

What we do

Clinical centre
1Evidence for a strong knowledge base of decease
Research Centre
2Evidence for a strong knowledge base of the decease
Practical

Practical

When questions are raised participants of the group can react. We will ask permission to share the answer on the internet (Anonymised)Everybody knows something, together we know everything :smile:!
Costs

Costs

Participation in our group is completely free, but only for people with a clear relation to Marshall-Smith Syndrome
Contact

Contact

Marshall-Smith Families as experts

MSS RESEARCH FOUNDATION
Oeverbiesstraat 20
NL-2548WP   The Hague
The Netherlands

NETHERLANDS
by phone: +31 70 33 56956


About the website contents

 

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@rtsyndroom.nl