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Praktische hulp aan het gezin


 For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Rubinstein-Taybi syndrome. 

In veel plaatsen zijn er instellingen voor extra hulp of zorg aan huis, de zogenaamde thuishulp of thuiszorg. Denk hierbij aan hulp bij de dagelijkse huishouding, hulp op 'spitsuren' in het gezin, specifieke hulp gericht op het verzorgen van het kind, een betrouwbare oppas en hulp bij de opvoeding.


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