Why you should sign up


We all got involved with Angelman Syndrome for different reasons; we have Angelman syndrome (AS), we are parents, we are brothers or sisters, we are family or friend, we are caring for a person with AS, we are doctors, we are teachers, we are researchers, we are curious...
And because we are this we understand the importance of sharing our experience!

You will have something to share as well, maybe just that you are 'involved'... but by seeing (reading), talking (writing), learning and sharing we will make life with AS more beautiful, that is our dream.

So please signup for our online community, it is free

WaihonaPedia for families

 

1

Your Story

Tell us your story. Sharing stories helps families feel supported and creates a sense of community. Your story is important for all of us!

2

Discover

Discover a community of like-minded people and find support along your quest. Otherwise, start a community of your own - we'll help you. Either way, you are not alone!

3

Join

Become an active member of your community. Share, discuss, ask questions and contribute. Everyone knows something, together we know everything!

Become a member!
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À propos du contenu du site Web

 

Toutes les informations contenues dans ce site Web sont uniquement destinées à des fins éducatives. Pour obtenir des conseils, des diagnostics et des traitements médicaux spécifiques, adressez-vous à votre médecin. L'utilisation de ce site est strictement à vos propres risques. Si vous trouvez quelque chose qui, selon vous, nécessite une correction ou une clarification, veuillez nous en faire part à l'adresse suivante : 

Envoyez un courriel : info@rtsyndroom.nl