Marshall-Smith Families as experts
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bij het Marshall-Smith Families as experts
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Doel van het Marshall-Smith Families as experts
To collect best-practises and best answers. We are not doctors, but doctors can use our knowledge to devlop knowledge about MSS! Important!Marshall Smith Syndrome Support Group is a Secure Facebookgroup for any Family Member or Caregiver of a person with MSS.
Team
Linda Van de Wetering-Mak
Henk-Willem Laan
Otto Mak
Diensten/kwalificaties Marshall-Smith Families as experts
| Expertise en/of behandel centrum | |
|---|---|
| 1 | Heeft bewezen uitgebreide kennis om aandoening te behandelen |
| Onderzoek centrum | |
| 2 | Heeft bewezen uitgebreide kennis over de aandoening |
Praktische info
When questions are raised participants of the group can react. We will ask permission to share the answer on the internet (Anonymised)Everybody knows something, together we know everything
!
Kosten
Participation in our group is completely free, but only for people with a clear relation to Marshall-Smith Syndrome
Contact
Marshall-Smith Families as experts
MSS RESEARCH FOUNDATION
Oeverbiesstraat 20
NL-2548WP The Hague
The Netherlands
NEDERLAND
via de telefoon: +31 70 33 56956
