Marshall-Smith Families as experts

welcome

at the Marshall-Smith Families as experts

Goal of Marshall-Smith Families as experts

Our goal

Marshall Smith Syndrome Support Group is a Secure Facebookgroup for any Family Member or Caregiver of a person with MSS.

  

Team

NEDERLANDENE
NEDERLANDENE
NEDERLANDENE

Linda Van de Wetering-Mak

NEDERLANDENE
NEDERLANDENE
NEDERLANDENE

Henk-Willem Laan

NEDERLANDENE
NEDERLANDENE
NEDERLANDENE

Otto Mak

What we do

Clinical centre
1Evidence for a strong knowledge base of decease
Research Centre
2Evidence for a strong knowledge base of the decease
Practical

Practical

When questions are raised participants of the group can react. We will ask permission to share the answer on the internet (Anonymised)Everybody knows something, together we know everything :smile:!
Costs

Costs

Participation in our group is completely free, but only for people with a clear relation to Marshall-Smith Syndrome
Contact

Contact

Marshall-Smith Families as experts

MSS RESEARCH FOUNDATION
Oeverbiesstraat 20
NL-2548WP   The Hague
The Netherlands

NEDERLANDENE
by phone: +31 70 33 56956


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Send en e-mail: info@rtsyndroom.nl