Marshall-Smith Families as experts
welcome
at the Marshall-Smith Families as experts
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Our goal
To collect best-practises and best answers. We are not doctors, but doctors can use our knowledge to devlop knowledge about MSS! Important!Marshall Smith Syndrome Support Group is a Secure Facebookgroup for any Family Member or Caregiver of a person with MSS.
Zespół
Linda Van de Wetering-Mak
Henk-Willem Laan
Otto Mak
What we do
| Clinical centre | |
|---|---|
| 1 | Evidence for a strong knowledge base of decease |
| Research Centre | |
| 2 | Evidence for a strong knowledge base of the decease |
Practical
When questions are raised participants of the group can react. We will ask permission to share the answer on the internet (Anonymised)Everybody knows something, together we know everything
!
Costs
Participation in our group is completely free, but only for people with a clear relation to Marshall-Smith Syndrome
Contact
Marshall-Smith Families as experts
MSS RESEARCH FOUNDATION
Oeverbiesstraat 20
NL-2548WP The Hague
The Netherlands
NIDERLANDY
by phone: +31 70 33 56956
