Informazioni

Information


Our information is written for and by people around Rubinstein-Taybi syndrome, so we know what we are talking about. We search for information, rewrite them to be understandable and share them. And share relevant news about Rubinstein-Taybi syndrome by readable articles. In this way we want to inform families, make the feel empowered to educate the cure- and care-people or give them just that little bit of support.

Because if there is something important for families with a care-intensive person like Rubinstein-Taybi syndrome, it is that the family remain upright. And that is what we, as community around Rubinstein-Taybi syndrome, are committed to doing with heart and soul.

Rubinstein-Taybi syndrome is a condition characterized by short stature, moderate to severe learning difficulties, distinctive facial features, and broad thumbs and first toes. It occurs in an estimated 1 in 125,000-300,000 births.


 

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All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@rtsyndroom.nl