Community Overview
Partners for WaihonaPedia
- Amsterdam University Medical Centre; Centre of Expertise (AECO) amongst others.; Pitt-Hopkins, Marshall-Smith-, Rubinstein-Taybi- and Cornelia de Lange-syndrome
- WaihonaPedia Foundation
Collaborating with other family communities offers shared knowledge, advocacy strength, pooled resources, and accelerated research progress. Together, these collaborations empower individuals, amplify voices, advance treatments, and raise awareness, ultimately driving positive change.
See our current partners below
All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at:
Send a email: info@rtsyndroom.nl
info@rtsyndroom.nl