Community Overview
Partners for WaihonaPedia
- Amsterdam University Medical Centre; Centre of Expertise (AECO) amongst others.; Pitt-Hopkins, Marshall-Smith-, Rubinstein-Taybi- and Cornelia de Lange-syndrome
- WaihonaPedia Foundation
Participants see below
Colaboración ayuda....
La colaboración con otras comunidades familiares ofrece conocimientos compartidos, fuerza de defensa, recursos mancomunados y avances acelerados en la investigación. Juntas, estas colaboraciones empoderan a las personas, amplifican las voces, hacen avanzar los tratamientos y aumentan la concienciación, impulsando en última instancia un cambio positivo.
Consulte nuestros socios actuales a continuación
Marshall Smith Syndrome Research Foundation
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Vereniging Cornelia de Lange syndroom
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Stichting Pitt Hopkins Syndroom
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Nederlandse Vereniging Williams Beuren Syndroom
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Nederlands, headerIconURL=, headerTitle=Nederlandse Vereniging Williams Beuren Syndroom, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/angelman/WebHome/vasnlogo.png?keepAspectRatio=true&height=100&rev=1.2)
Vereniging Angelman Syndroom Nederland
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Stichting Rubinstein-Taybi
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Stichting Tubereuze Sclerosis Nederland
