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To be able to register you on WaihonaPedia, we would like to know more about your involvement. Are you related to somebody with a rare disease? Would you professionally search for more information? Or is your interest related to a study?
Your answers to these questions are an important to us. They give us more insight in the prevalence and the social and medical involvement. Most important they allow us to help you best.
Step 1
Before we can ask you the questions above we need some basic information to serve you well.
please complete the form below,
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