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De beste en meest betrouwbare informatie is te verkrijgen bij degenen die er het meest mee te maken hebben: de ouders van kinderen en volwassenen met het Rubinstein-Taybi Syndroom, en natuurlijk de kinderen en volwassenen zelf.


                                                                                                                                                                                                                                                                                                 

                                                                                                                                                                                                                                                                                                                                                                                                                                           

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