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These questions and answers are collected for and by people with Rubinstein-Taybi syndrome (RTS) and professional experts around RTS.
In doing so, we believe to be a helpful resource for those affected by RTS in their search for answers. Rare, but strong together!
Rubinstein-Taybi syndrome is a condition characterized by short stature, moderate to severe learning difficulties, distinctive facial features, and broad thumbs and first toes. It occurs in an estimated 1 in 125,000-300,000 births.
